"Autistic Leopard Enters the Club," digital illustration by the author. Digital tools include AI. A leopard with realistic human-like eyes and facial expressions is opening a an ornate dark wooden door into a club. The leopard is wearing a red fez hat with the text "LEOPARD CLUB." The image suggests themes of membership and identity, akin to the discussion of identity groups versus individuality in the context of neurodiversity, as highlighted in the podcast episode "Autism? It's a State of Being. NOT an Identity Group."

Autism? It’s a State of Being. NOT an Identity Group

Neurodiversity Unveiled. It’s a state of being. This episode cracks open the truth. We dive deep… beyond labels. Into the heart of authenticity. Your journey. Your truth. Let’s explore them together…

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Transcript

Intro

🚨Content Note

In this episode of AutisticAF Out Loud, I get pretty direct about issues in the Neurodiversity community.

Whether you’re autistic, love one, work with some, or maybe… think you are one…

It’s likely, I say something you disagree with. Let’s still stay friends… and talk in the comments. Could be we’ll find some truth together.

Is there any other way?

I’d like to share a few thoughts. Then let’s jump right into the differences between a personal identity, an identity group, and the autistic traits we were born with. Once we navigate these waters together, let’s see if we can find our true autistic selves… beyond society’s labels.

I call this one…

"Autistic Leopard Enters the Club," digital illustration by the author. Digital tools include AI. A leopard with realistic human-like eyes and facial expressions is opening a an ornate dark wooden door into a club. The leopard is wearing a red fez hat with the text "LEOPARD CLUB." The image suggests themes of membership and identity, akin to the discussion of identity groups versus individuality in the context of neurodiversity, as highlighted in the podcast episode "Autism? It's a State of Being. NOT an Identity Group."
“Autistic Leopard Enters the Club,” digital illustration by the author. Digital tools include AI.

Autism? It’s a State of Being. NOT an Identity Group.

You are born autistic.
There’s no initiation fee.
No secret handshake.

And you don’t need anyone’s approval to be autistic. It’s not like there’s a club they can kick you out of.

Maybe… they won’t let you sit at their lunch table. But you’re used to that. Right?

Just. Do. You.

Seems obvious. Or is it just me? Cuz…

"Autistic Shibboleth." Digital illustration by the author, tools include AI. Two leopards with human-like facial features and expressions are facing each other, one's paw gently resting on the other's, in a manner resembling a handshake or a tender exchange. The background is a dimly lit, misty forest. This image metaphorically represents the theme of connection and mutual understanding within the neurodiverse community, as discussed in the podcast "Autism? It's a State of Being. NOT an Identity Group.
“Autistic Shibboleth.” Digital illustration by the author, tools include AI

I feel a growing pressure to conform.

Today, it’s the healthy demand avoidance side of me speaking. My built-in “authenticity filter,” screening out anyone who casts shade on my individuality. With hidden motives.

See, I tend to… well, go nuclear meltdown around demands for conformity.

Whether from medical pros who diagnose me… defective.
Helping pros who counsel… that I become more like them.
Or even autistic advocates who define proper language… and correct attitudes… to “unite our people.”

Look… I can NOT handle pressure.

That ain’t gonna change… this autistic lifetime.

I’m a slow learner of new thoughts. Given time, I write articulate prose. Given a multiple choice test, I suppose that I test high on intelligence.

But I learn… and change… at my own pace.

This means I thrive on patience and space. You can’t rush me. Or force me into a box. My growth and understanding unfold in my own autistic time. Not according to social agenda.

This is why, I want to talk about the differences between identity and “Identity Groups.” Particularly Toxic Identity Groups. I think you’ll see pretty quickly why this is crucial to me.

"Autistic Leopard Sits Alone," digital illustration by the author, tools include AI. A leopard is portrayed with human-like behaviors, finding his seat alone in a cafeteria, carrying  a meta; tray with various compartments filled with different dishes. The setting is a busy cafeteria with people dining in the background, obscured by a hazy jungle atmosphere in the background. This scene symbolizes the podcast's discussion on "Autism? It's a State of Being. NOT an Identity Group," emphasizing the right to individual choices and preferences, akin to selecting one's meal, in the context of one's life and identity, without sitting at the cool kids' table.
“Autistic Leopard Sits Alone,” digital illustration by the author, tools include AI.

Here are 3 different things.

  1. An Identity Group.
    People who share traits that bind them. So they hang. Could be their culture, politics… neurodiversity.
    Think Armenian. Or Democrat. Perhaps Neurodivergent…
  2. A Personal Identity?
    It’s the real you. Your quirks, feelings, beliefs. Who you are inside.
    Musician? Romantic? Loner? That’s you.
  3. An immutable state of being.
    It’s the part of you that you were born with. The skeleton that everything else hangs on.
    Mostly genetics, some neurology, early life experience. And for some… your spirit separate from your life activity. Or group membership.

Tall doesn’t always mean “basketball player.” Beauty doesn’t equal “social.” Autistic? Maybe you’re a Professor X fan. Not so much Star Trek Picard.

Psychology, sociology, political theory, theology, all argue amongst themsevles about the specifics.

Hell, I use too many words…

Autistic Leopard can’t change his spots.
👉Immutable state.

Autistic Leopard has some… but limited… control over whether he’s a dick or not.
👉Personality or identity.

But Autistic Leopard chooses whether he swears loyalty to, pays dues to…. or follows the rules of… his Autistic Leopard Club.
👉 Identity group.

But. No. Matter. What… Our friend is still an Autistic Leopard. Can’t be cured. Can’t be fixed. Can’t be converted.

Doesn’t need a pro with a sheepskin to bless him. Or an autistic prophet to baptize him.

Autistic is who he is.

"Autistic Leopard Can't Change His Spots", digital illustration by the author, tools include AI. A leopard with a human-like expression of determination is humorously trying to lick and clean its spots, a playful nod to the idiom "A leopard can't change its spots." This image metaphorically suggests the theme of challenging the notion of fixed identities and the podcast's exploration of personal growth and transformation beyond preconceived labels.
“Autistic Leopard Can’t Change His Spots”, digital illustration by the author, tools include AI.

Back the Truck Up… Toxic Identity Group?

Most groups have rules. A golf club wants dues paid, divots replaced. A vegetarian club gonna diss you for leather shoes. Religion? Share their core beliefs… or go to Hell.

A group that wants to flex their identity? Might require members to dress, speak, believe, or act alike. Usually, leaders create rules to encourage group growth. But all too often, those directives personally favor the few who “run” the group. Some commandments may even harm members.

Gatekeepers? These are leaders or members who have more power than others. They make decisions, reward or punish individuals, decide who joins or gets kicked out. Ya know, they get to say who’s a real leopard. And who is not…

This power can protect, support, or welcome members. But some gatekeepers bully current or former members. Some outright steal from or sexually abuse the weak.

Conformists want everyone to be like them. Members must be pure… according to group standards. This can create unity, by sharing common values. Or it could magnify a social movement’s power to effect change. But pushy demands for pure language or belief? Gives them the power to impose their values on others. Or annoys and drives away potential friends and allies.

Then there are Evangelists. Enthusiastic, they believe they possess the right, true way. Spreading their message can raise awareness, educate others, or offer help. But sometimes, evangelists harrass, mislead, or shame others to comply.

All identity group traits can be useful. Or not.

Power structures can harm members… and non-members. When they do… that’s a “toxic” identity group.

I believe some exist in the autistic ally and advocate space. There is no point in dropping names. They would only be my opinion… essentially gossip. But in the four short years I’ve been actively writing about my autistic life…

  • I’ve been asked to sign loyalty oaths, swearing to follow the commands of higher ranking group members.
  • Criticized for behavior not “truly autistic.”
  • Asked for donations from organizations who simply do not report how they use their finances.
  • Frequently pressured to work for free for the benefit of autistic spokespersons.
  • Told that… for the “good” of the autistic community… I should drop my work and instead “join the team” of a more popular social media figure.
  • Condemned for language use.
  • Shunned for having social media “friends”… I barely know.

Look, this ain’t a list of complaints. Or a claim of victimhood. I’m doing just fine watching the craziness go by… and listening to my own gut.

This is a public service warning. These experiences aren’t just mine. I hear from autistic readers and listeners. Some feel their individuality is often overshadowed by group norms. Especially folks just discovering their authentic autistic identities for the first time.

There’s a special kind of emotional abuse that some call “abuse of trust.”

A parent, pastor, helping professional, a gym coach or justice warrior… Each has a sanctified role in our society.

Maybe there’s an instinctual hole inside the human heart. A junk-sick need to feel nourished and protected against the world. By Mom, Officer Friendly, Disney’s Lion King.

Abusers of trust sneak inside that hole. And use it against you. Be careful out there. Not everyone waving an Infinity Flag has your interest at heart.

If you’ve felt the sting of misplaced trust, or even the trauma of betrayal… find support that resonates with you. This might be a therapist skilled in navigating the trauma of abusive relationships. Or it might be a compassionate pastor. Or a friend whose judgment you value deeply.

Speaking of Infinity flags, tho…

Red Flags, Blinking Yellow Lights and Stanks to Avoid…

All my autistic life I’ve been gaslighted. Told I couldn’t trust my feelings and impulses. That to know the right thing to do I must first seek…
A parent’s approval.
An expert’s advice.
A teacher’s method.
A priest’s commandments.
A nutritionist’s diet.
A doctor’s blessing.
And above all… a university’s diploma. Preferably, a private university…

Maybe this works for typical humans. Or maybe it just makes a living for the professional class. I dunno. What I do know is that no expert I’ve ever paid understood my autistic life.

It was never true. I never needed an expert to know what I felt. I never needed a clock to know when I felt hungry. Even if I sometimes forgot to eat in the throes of creative passion…

And I ALWAYS knew when something made me feel icky. Once I stopped feeling guilty every time I didn’t feel the way they told me I should feel..

"Autistic Leopard Finally Gets Wise," digital illustration by the author, tools include AI. A leopard is seated in a serene forest, adopting a pose reminiscent of meditation, with its front paws resting gently on each other. The forest is shrouded in mist, creating a tranquil and almost mystical atmosphere. This image can be seen as a metaphor for introspection and finding inner peace amidst the journey of self-discovery and authenticity, themes that resonate with the podcast episode "Autism? It's a State of Being. NOT an Identity Group."
“Autistic Leopard Finally Gets Wise,” digital illustration by the author, tools include AI.

So here is a simple list of things I look for when I meet someone’s new group.

I’m not advising you to adopt it. But it may give you some ideas.

  1. Claims of superiority like racism, eugenics, sexual or gender discrimination. Aspie Supremacy is a good example.
  2. Claims of inferiority for any other human group. Ya know? Some jokes about “neurotypicals” aren’t insightful. Just mean.
  3. Any group organized around a single, exceptional human or exclusive group of founders. Gurus, philosphers, mad scientists, and… especially… genius billionaires all give me the willies.
  4. Any group unwilling to offer public information on founders or board members. I need public accountability to offer my trust.
  5. Nonprofit or for-profit groups that do not file annually with the IRS or other public oversight organization.
  6. Overly using exotic or restrictive insider language. It may indicate high levels of control or manipulation.
  7. Demands for purity or conformity. Even in the pursuit of the noblest cause, externally imposed conformity feels like imprisonment to me.
  8. Complaints of current or former members.
  9. Group hostility toward questions or disagreement. ANY talk of enemies, traitors, or heretics. Even meant to be humorous.

When I see a status structure, I resist.

Hierarchical structures and status roles are complicated for autistic me to understand. Therefore exhausting. Some research in the readings below shows that other autists feel the same.

And on top of that, I was in a religious cult for some 28 years before I broke free…

What I’m getting at is, I may be biased about rules and hierarchy.

But guru or garbage man, I’m likely to ask you who made you the boss? Even more, I’ll ask who made your rule? Who benefits? Who’m I hurting if I break it?

To the best of my ability, I think for myself. And make my own choices. Even when I admire or respect a cause.

I keep plenty of air between any group I support… and who I really am. And try not to confuse noble goals and language… with real-world actions.

I offer no advice to anyone. That’s not part of my identity.

I write only about my values. And look forward to hearing about your thoughts. Because, over time…

That’s how I learn.

Key Takeaways:

  1. Autism is an innate state of being, not a choice or a club with membership criteria.
  2. Personal identity is unique and varied, transcending simplistic group labels.
  3. Cherish individuality amidst pressures to conform to external expectations or group norms.
  4. Be wary of toxic identity groups that prioritize conformity over personal authenticity.
  5. Seek supportive communities that respect personal autonomy and encourage open dialogue.
  6. Trust in your own experiences and feelings as valid and informative, even when they differ from prevailing opinions or expectations.
  7. Engage with groups and authority figures with a critical mind and a strong sense of self.

Further Reading

On Group Identity

On Toxic Identity Groups

On Abust of Trust and Betrayal Trauma

On Autistic Social Rank Perception

Articles from AutisticAF on similar themes

Autistic Noir: They Called It "Immaturity." They Missed Every Red Flag #AutisticAF Out Loud

Cold openWelcome to the Treatment Funhouse…First room. Guy in a jumpsuit, “We gotta strap ya in.” He waves at a chair. “Safety,” he says in a bored voice.So you sit. You really want… something… different in your miserable life.[Brief music]Suddenly he snaps manacles on your wrists. Then behind you he grabs a blowtorch…[music]IntroThis is AutisticAF Out Loud, Season 7, episode 1. Today, I find moments of joy… after some brutal ones.Like Leonard Cohen sang in Suzanne, “among the garbage and the flowers.”I’m Johnny Profane. Startled awake. Taking a new direction. And writing a neurodivergent autobiography… out loud.Content note: Mentions abuse, trauma, suicidality… and dark humor.Just one autistic elder’s voice. Raw.3 fragments from my free archive, autisticaf.me… I’ll tell you more at the break.[music]Welcome to the Treatment FunhouseBeing trapped in the medical model of autism for decades?Imagine an elaborate carnival funhouse… the kind that’s a maze. You gotta find your way out. But…This one’s got a horror theme.The sign outside… “23 Mirrored Rooms That Will Change Your Life… Forever!”Never saw that before.So you stand in the long wait line. That, naturally, doubles back on itself. Many times.Finally, you belly up to the barker’s ticket window. Start to scan the price board.“125 bucks?” You cry out.“You wanna change yer life, kid? Whatchya think it would cost?”So you sigh. You think…You need… different. You fork over.First room. Guy in a jumpsuit, “We gotta strap ya in.” He waves at the chair. “Safety,” he says in a bored voice.So you sit. You really want… well, something… different in your miserable life.Suddenly, he snaps manacles on your wrists. Then behind you, he grabs a blowtorch.You see this scene reflected in all the mirrors. In detail. Enhanced by all your grisly memories.You protest. “What the actual fuck.”“Trust me. This is the latest research. Sure as hell gonna change your life.” That smile. Thin. Cold. Professional. “We got paying customers outside. Lined up. Waiting to get inside. You in… or out.”You reflect on your miserable life. You nod.Then he slowly, methodically works you over. A light burn here. Another there. Starting at your feet. Working upwards.You scream. You cry. You plead. You evade. You bargain. Not a word out of Jumpsuit Guy.And… the only way you can block out the terror reflected in those mirrors?Close your eyes…He finishes. He unshackles you. Helps you up as you tremble. Guides you efficiently to the door.“Next room. Room of Knives. Yer gonna love it,” he laughs.“Just 22 to go.” Leans in… conspiratorially. Whispers in my ear…“Wait til the Meds room. Everybody talks about the Meds Room.”Beat.“If you make it there.”musicInterludeOkay, then. A fun little… metaphor. Now… some dark reality. Family… and professionals… tossed off what I was going through in my late teens as “immaturity.” Something I’d age out of. Totally ignoring all the red danger flags of the coming disaster.Quick side note. Some folks wrote you couldn’t read articles. Multiple platform problems… demands you subscribe… pestering friends, even if they used a“free” link.I heard ya . So, I built my free personal archive at autisticaf.me. No paywall. No ads to piss ya off. All free & shareable… on me.You’ll find more pieces like this next one… there. — The Autistic Treatment Funhouse, Room of ExamsThey Called It Immaturity. They Missed Everything.Content note: This is the tough one I mentioned. With the brutal flowers.Look, first of all… This is not the beginning of a poor-me story.This is a story of how I found moments of joy… and darkness… in my autistic life. Like Leonard Cohen sang in Suzanne, “among the garbage and the flowers.”But I found dark humor… every where.1972 was a hell of a summer… Room 1I first sought a diagnosis at 19. Following suicide attempt #1.I was driving after dark. Which I wasn’t supposed to do… new family rule.See, I’d damaged our car the week before, making a hasty turn into our driveway near Jumping Deer Road in Katonah. Hit the damn stone wall on the way in.This was Westchester County, NY. Local code only allowed a nano break between the 18th-Century stones guarding our yard. Colonial heritage or something… masking slave labor.I’m in the doghouse. With parents already skeptical about letting me go to college. Not “mature” enough.Yet, when the hood and fender are finally fixed? They drop me off on a muggy, hazy June night. Out in the boonies at the old Amawak Service Center on Route 202.“Pick it up and bring it home. No side stops.” Then they instruct me, “Be… careful.” Rolling their collective 4 eyes.I pull out, then wait. The light’s gotta change at the 4-lane intersection with Route 35 before I can head home.The light turns green. I go into a weird space in my head. There’s… there’s some reason I shouldn’t turn left… yet… But I watch myself shrug, flick my signal switch, and turn. Right into two lanes of accelerating traffic coming right at me.Don’t remember much more. Just the red, don’t-turn-yet-idiot arrow. Staring at me brightly… through the windshield that used to be there.I survived. That classic, white 1965 Mustang… didn’t. Barely street legal, 271-horse V8 under the hood. Maybe the most collectible American car of all time.A hand-me-down gift to our family from my father’s father. Who bragged, “I had to jew the dealer down from 5 grand,” back when he bought it new in ’65. A lot of money then.Um, things got tense at home.“You are responsible for your own actions. You are the cause here.”Parental meeting time.“Uh, I don’t know what happened.” I couldn’t stand these “meetings.” So many in my childhood. This was maybe the worst of all.“I don’t know. It… it… just happened.”Making my parents even more furious. These were avid Ayn Rand readers. And my grandfather? He slept beside an orderly nightstand. Mein Kampf tucked tightly in its tidy drawer. My dead father’s voice echoes coldly in my mind still. “You are responsible for your own actions. You are the cause here.” But, I stumble on. Making things worse… in my way.“Something’s wrong. I don’t know what. I’m having horrible visions. Hitting people with the car as I drive by. Hitting their bodies… bones…” I trail off. Into stony silence, I say, “And now something weird happened. I think… I think… maybe I should see a doctor…”Next thing I know, I’m sitting in front of a Westchester County caseworker. Cuz my parents felt a psychologist or private therapist cost too much.I had no idea what I was feeling… much less why.The intake experience was horrific.I felt… badgered.She called it… delicately. “Maybe the accident looked like an attempt to… maybe… harm yourself?” But she continued with a sledgehammer.“I know you have a secret you want to tell me.” Rinse, repeat… Rinse, repeat…I wanted so badly to please her. But had no idea what I was feeling… much less why.Worse yet? There were things I didn’t want to tell her. Darker than the physical or sexual abuse she was probably check-listing. Things a traumatized kid might do… himself.I never went back. I told my parents I was uncomfortable talking to her.My dad rocked back in his dark, maple, Early American dining room chair. “Fine. That’s your choice.”He paused. Looking directly at my mother as he said to me, “I can see you won’t speak to this counselor. I see no reason to look for another for you to talk to. Your decision.”And that was that.We were all dying for freedom.Finally at 63, a psychologist specializing in autism gave me another name, Alexithymia.He said a lot of autistics can know something is wrong. But not know what. And baptized me, Autism Spectrum Disorder… with a side of ADHD.2016 was a good year. A damn fine year.But 1972 was a summer from hell.The last US troops shipped home, fleeing Viet Nam. Palestinians massacred Israelis at the Olympics. My father died that August. The week after he molested me for the last time.We were all dying for freedom.[music]Cuz… if you don’t know us… how ya gonna love us.InterludeOkay. Here’s the last frag I toss… today. Let’s end with joyful moments. Among the dark. Let’s end with survival.See, I’m giving you these fragments of my life…Cuz… if you don’t know us… how ya gonna love us.And this is part of me, too…[music]I Don’t Think I Had a “Personality” as a KidI was busy finding Infinity in a burnt-off ant leg…This one brings home the stakes.The moments of joy along the way… that drew a line under what could have been. Not if they fixed me. But maybe what all of our children could be.If we just listen to them. And support what they say they need.“What are you doing…?”My mother’s voice was sharp.I’m lying spreadeagled on the backyard grass, face down.“I’ve called you three times.” Annoyed. “WHAT are you doing…?”I don’t know it in Second Grade… But I have difficulties shifting attention when I’m lost in thought…I try to focus my ears…Then think back,review my short-term memory,and replay the last few moments.Trying to hear and translate anything she might have said while I’m in my private thought bubble…Already at 7, this process of “rehearsing” or “rewinding the tape” to interpret what’s going on? It’s an automatic, constant routine when I’m around… well, people.Checking for verbal mistakes, missed cues… Just trying to understand, what’s going on…?So I’m still trying to sort it out,choose words carefully to explain,clearing my throat,moving my sleeping tongue,loosening my jaw,getting ready to speak…“HEY! WHAT ARE YOU DOING?!”“Umm… Nothing…?” Close as I come to a lie at that age.I’ve been lying in the grass for an hour or so, exploring with my new magnifying glass.See, there was this great hobby shop in Johnson City. It had all kinds of cool science “toys.” And I had saved my 50-cent allowance for weeks to buy a “Real, hand-held, magnifying glass  —  made with ALL-METAL handle!!”I was entranced.Examining grass leaves, dew drops, and…Ants.Dozens of ants. One after another.Legs.Antennae.Mandibles.Eyes.Guiltily burning off the occasional leg with focused sunlight…Endless fascination…I was in the flow…“Okay. Whatever you are doing…” I wait for the command I know will end my timeless bliss… “Stop doing it. It’s time for lunch.”I sigh. Roll over.And. Trudge. In.Hardly sounds like abuse, right…..??Imagine that last, delicious dream you’re enjoying as you drowse in a warm snuggly bed… when you don’t have to get up…My autistic joys are hard to explain to another person.Pretty much ANY non-autistic person.And trying to… drags me into Deep Philosophical Waters…Imagine that last, delicious dream you’re enjoying as you drowse in a warm snuggly bed on a lazy Saturday morning when you don’t have to get up…And someone screams, “GET UP!”Eyes pop open. Instantly. You’re so startled, for a minute… you have no idea where you are, what you’re doing, the time of day, the season…Now… imagine that… if you can…Every. Damn. Day. Many, many, MANY times a day… Every single day of your childhood.Torture.Being startled out of the flow? It’s like that.Capisce? Ya dig? Feel me?That’s as close as I can think of to explain my moments of autistic flow.Or, better yet, my autistic joys.That same joy you seeon an autistic kid’s faceas he dances endlesslyin a sprinkler in the sun…If I had to guess, this is precisely what Being in the Moment, in the Now, maybe even Zen Satori…Mean.Gradually as I aged, these blissful moments became fewer and fewer…Now, that’s all preamble to what I really wanna talk about…Here’s the deal on Flow…I think that’s where I spent most of my time as a young kid.When I wasn’t interacting with family, a few schoolmates, parents, one teacher a year… the few humans I let into my life back then.And that time alone… Endlessly exploring, learning, feeling, being… was…Wordless delight.Gradually as I aged, these blissful moments became fewer and fewer… further and further and further apart… nearly gone…First, I was forced into a school system… That I was clearly not wired for.Rigid.Lockstep.Regimented.Regulated.BORING.No Free Time.To simply… explore.Later, of course, it got MUCH worse. Jobs, relationships, finances… Life in Modern Adult America.Like when I founded Unix World magazine. I was so high on the concept and the joy of process… My inner vision won us awards our first year. Western Publishing Association Best New Publication and Best Issue. Beating out Macworld and PC World.Yeah. We won awards. A couple months after I was fired from my own mag. Fired because… in my autistic mind… the game was Create the Most Amazing Publication… Ever.But the whole time, the world was shouting that it was Make the Most Money You Can… Right Now.Snake eyes. I lost.My natural state, left alone to my own devices? Wandering from moment to moment of… fascination.Now, I have some personal speculation to get off my chest.First… I don’t think I had a native personality when I was a kid…At least not as bell-curve average humans understand a personality.My natural state, left alone to my own devices? Wandering from moment to moment of fascination. No motivations. No intentions. No (verbal) thought…So… I was either happy exploring in the fields… or with my chemistry set in the basement… or catching polliwogs in Spring pools…Or I was forced to don my “personality.”In other words,the language,facial expressions,body language,polite responses,social lies,and predictable actionsthat humans think of as “personality”…and that social contact demands.Which is so natural for most humans, they aren’t even aware of it.Even though they must have it from me… to feel safe.But, for me, “personality” was likebeing dragged out of my comfy pajamas,forced intothe worst, most cumbersome, restrictive, awkward, embarrassing winter coat,ear muffs,muffler,heavy snow boots,and mittensyour mother ever stuffed you intoto shove you onto that bus to kindergarten…And “personality” still is suffocating. Today. In my 70s. Ten years after diagnosed as autistic and ADHD.Especially, “fun times”… They’re the real killers.Parties.Intimate conversations…Shudder… Family holidays? So nightmarish, I wrote the 7-page narrative poem sneaking my mother’s creepy g-d on high.These are all times I must adopt my “personality.” You know, to survive. No matter how much “fun” they’re supposed to be.What pros call “masking”? Really nothing more than exhausting habits of behavior & speech. That I must shroud myself in. Like an embalmed mummy. Just so it’s easy for other humans… to feel “comfortable” around me.Not an essential Self. Just, ya know, “personality.”Certainly not me. Nothing comfortable about it.I’m going to hazard a guess.Which may be narcissistic delusion… Flow seems awfully close to what the Buddha described as experiencing “no-self” vs. the “conditioned mind.”From at least age 2 on, I clearly remember lucid dreaming and long periods of time spent without verbal thought of any kind. Just perceiving, in awe and wonder…EVERYTHING.Until I had to interact with humans. Any humans. Even those I was required… to “love.”And donning the “personality”? The joy collapsed. Fast as a quantum waveform when you try to measure it. Not into pain…Collapsing into an all-absorbing effort.Intellectualizing every word,gesture,tone of voice of my own…Then interpreting all those of each and every human I was with at the time…and THEN determining precisely the right word,tone of voice,facial expression,and body attitude to project back…all at the same timeTo avoid being in trouble.Because I was… Bad.And I had to protect everyone around me from that.Every. Single. Second…And even at a young age, a growing sense of the need to protect others…From me.Because I was different. Because I hurt people without understanding. Because I acted as if I were “arrogant”… etc., etc.Like two divorces. Cuz I could be amazing for 3 to 6 months. Caring. Fun as hell. Then fall into deep depressions and work burnouts. Cuz I couldn’t handle that much intimacy. Hell, that much time alone with another human…Because I was… Bad.And I had to protect everyone around me from that.Every. Single. Second… That I am with another human.Except very young children. And of course, animals… Since I was… 4 years old.Now since diagnosis, I found a few tricks.In 2019 when I first started writing about my autism, I was all about lists. Trying to “help” others. Took me a year or two to realize we are… every one of us autists… different. Different lives. Different needs and goals. Different survival skills.So I’m only an “expert” on my own life. Even if I am the only expert on that there is.Your mileage certainly will vary.But for me? My autistic life is not about “getting better.” Or fixing me. It’s about knowing who I truly am. And what I truly need. Doing what I can to meet those needs.Then being… me.So I moved to the Country…Living in the trailer across the courtyardFrom my third, loving wifeWhere I can reduce sensory overload.Reduce the number of humans I talk with To only folks I feel comfortable around.And stopped failing at jobs I was never built to do.But I… now… can pursue those things that have brought me joy since childhood.Spending unstructured, unmeasured time on any of my passions…walking in the wildest Nature I have access to,baking bread,fermenting pickles,gardening,deep-focus while replaying a favorite movie… that seventh time,illustrating,writing,playing music,researching world events….so, so many others.When I pursue a “special interest”… alone? Sometimes it’s nearly orgasmic… In fact, I’ve redefined my understanding of my passions.They’re not a forbidden pleasure. A shameful quirk. Something I “waste time on” when there’s nothing more important to do.They are my gateway to Bliss, Satori, Oneness… Maybe even whatever God is… or Isn’t…I’m not talking toxic positivity. My autistic joys aren’t some advanced spiritual state I’ve achieved in my 70s. And now, suddenly… I’m here to tell you how to make everything okay. And talk you into buying your 5th NEW self-help system on the way out the door.But my joys are moments of love and happiness sprinkled through most of my days. Between meltdowns and burnouts. And some average life.They are my reason for Being.There are just NOT 7 Easy Things that Successful Autistics Do…That Will Change My Life Forever.There’s just living complex… and in the end… wild autistic life.being old & autistic ain’t so bad.losing inhibitions.some of which protected me from…Life.freedom turns out to be pain…and joy…in superposition.until maybe they annihilate you.Notes from the bardobefore the bardoI learned a lot that Spring afternoon on the lawn in Johnson City.I saw Infinity in a burnt-off ant leg.And, eventually… I went for it.[music]OutroNow you know. So… there ya go.This project is consuming me. In that good, auDHD passionate way. Cuz your response keeps me going.If it meant something to you… I bet you know someone else it will mean something to. Share it.Everything’s free at autisticaf.me. For everyone. On me.Stay weird.Stay fierce.Stay alive. * If this 3 fragments grabbed you… binge them all in order here: The Book: Frag by Frag.Click to get the next frag in your inbox free. Plus a PDF of my chapbook. To support my work, consider a paid subscription.These fragments are from my upcoming autobiography, Autistic Noir: My Life is My Art, arriving Fall 2026.I’m building a book out loud. Fragment by fragment. Just like I lived it.The Next ActDon’t trust a corporate algorithm’s decision about whether you get to see the next excerpt or not.Join my Substack for free… and the next fragment comes straight to your inbox. And you get a free digital download of my complete poetry chapbook.* Unlock the next act for free.Why I Write My AutobiographyI’m only an expert on my own life. Born 1953, diagnosed at 63. Your mileage will vary.Individual minority voices speaking truth out loud? They build bridges to mainstream readers. Think Malcolm X. Think Maya Angelou, Think Janet Mock’s Redefining Realness.This Fall, I hope to deliver that kind of impact, that power with My Autistic Life is My Art. For our neurodivergent community.Since 2019 I’ve published a quarter of a million words. Over half the size of the Lord of the Rings trilogy.Gotta be a pony somewhere in that shit. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit johnnyprofaneknapp.substack.com/subscribe
  1. Autistic Noir: They Called It "Immaturity." They Missed Every Red Flag
  2. When "Kind" Words… Hurt: An Autistic Elder on Microaggressions
  3. Family, God & Vodka Neat…? My Autistic Elder’s Truth
  4. 7 Autistic Decades. I'm Still Driven. What If I NEVER Get “There…”?
  5. Autistic in a Sea of Faceless Ghosts… I Still Want to Remember You

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2 responses

  1. Infidel753 Avatar
    Infidel753

    “…..asked to sign loyalty oaths….. Criticized for behavior not ‘truly autistic’….. Shunned for having social media ‘friends’… I barely know…..”

    The minute you see anything on that list, run for it. All that stuff is cultish / manipulative / exploitative behavior. Same for a “group organized around a single, exceptional human”, a “guru” type. That has cult written all over it. You shouldn’t have to deal with this crap on top of being autistic.

  2. Johnny Profane Âû Avatar
    Johnny Profane Âû

    Hey friend! Thank you. You are right. This is what I was getting at. And it’s kinda rampant in my space. I have wanted to write you. You may see my energy level is up. I have more clear moments. I read about what’s going on for you. I will try to write today. I want you to know that I am in a clear patch. One of the best in years.

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